I’m having to change a huge narrative all while being mentally ill.
The life in attendant culture is a hard one because we are having to go against the grain to get the narrative to change. For too long attendants have gotten away with being lazy or doing a half ass job because the system is set up to screw folks with disabilities over. Attendents make less than the person flipping burgers at Wendy’s.
If you saw my day like if I let you be a fly on the wall you would not believe the things that happen. The situation solving and the constant unknown are two very big factors of everyday. Never know what is going to happen just have to go with it and go through it with patience. That is hard and very taxing.
I don’t live the life a person with a disibility lives being able bodied I’m able to use my full body for what it’s meant for. A disabled person needs those extra bodies (attendents) so that they can live their best lives. We don’t have to be warn down by an excisive lack of accessibility because if there isn’t a side walk we can just walk around. The power chair has to turn around.
Imagine for a second, you are afab, disabled, can’t walk, live in a chair, and have had people leave on you mid shift or just decided to never come back. You would be crushed oh and by the way you are 28. Watching your people get to go out and do as they please while they leave you behind to figure out what to do…
This is so heart breaking and it’s hard changing this narrative for good and being able to live truth in the middle of being mentally ill, I can’t imagine what it is like for others who have more than one disibility. So, here I am an attendent, for one of the most amazing people i know riding this huge situation together and trying to change the narrative. We shouldnt have to fight so hard for rights basic human fucking rights.